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  The Irreverent Buddhist: writing from a Buddhist perspective on
  subjects from the deeply personal to the thoroughly political.


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Sunday, September 30, 2007

      MRI Defecating Proctogram: The Proof Of A pudding Is In it’s Eating.

Well they did an “MRI Defecating Proctogram” at University College Hospital. I’ve put a video of the results on youtube. I can’t get the damn thing to embed though so you’ll have to click this link to watch it. (no you won’t keep reading :) )

What it shows quite clearly - something I have said all along - is that I do not have proper enervation to my pelvic floor and rectum. You can see that the force to evacuate my bowel comes from my diaphragm pushing my other organs and intestines down into my bladder and rectum to evacuate the radioctive goo they injected into my jacksy. Hold up, might have Youtube sussed:

Woot! Woot! got it working …. oh yeah .. so back to the story ….

Look at the top right of the picture thats where the momentum and energy is generated to achieve evacuation of my bowel. The force squishes my rectum shut like squishing water from a plastic bag.

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Filed under: Medical History Stumble it! zigzagzen @ 7:51 am
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Saturday, September 29, 2007

      From Kate Nash: Mouthwash

This is my face, I’ve got a thousand opinions and not the time to explain
And this is my body, and no matter how you try and disable it, I’ll still be
here
And, this, is my mind, and although you try to infringe you cannot confine
And, this, is my brain, and even if you try and hold me back there’s nothing
that you can gain

Because I use mouthwash
Sometimes I floss
I got a family
And I drink lots of tea

I’ve got nostalgic don’t know
I’ve got familar faces
I’ve got a mixed-up memory
And I’ve got favourite places

And I’m sitting at home on a Friday night (2x)
And I’m sitting at home on a Friday night and I hope everything’s going to be alright (2x)

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Filed under: Life Stumble it! zigzagzen @ 6:07 am
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Thursday, September 27, 2007

      Patientline Treading On Human Rights: What A Fecking* Lame Excuse.

The use of the word feck* was the problem … yeah … If you read this from a bed on a Patientline system go search google for feck* or try wikipedia.

They can all use feck* but I can not? Doesn’t make sense sorry -lame, lame, lame.

Also does not explain why one site I own got blocked as it contained a blank hosting page from my reputable webhost.

Like I said lame. If Patientline wish to respond, the lovely lady is welcome to register with freedomforall.net and leave a comment.

* U know what I mean: if you don’t search google for feck, the first page at Wikipedia.org explains.

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Filed under: Medical History, Politics, Website, Life, Computers Stumble it! zigzagzen @ 1:48 am
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Wednesday, September 26, 2007

      Patientline Relent: Lame Excuses

A lovely lady from Patientline returned my call. She was very efficient. She listened to what I had to say and she resolved this hiccup. It was blamed on a story linking to a satirical website. It did not include any explanation as to why all four domains, including one hosting a blank page, were “taken out” in one hit.

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Filed under: Life Stumble it! zigzagzen @ 4:00 pm
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Tuesday, September 25, 2007

      University College Hospital, Metropolotian Police Corruption and Patientline: Subverting Human Rights.

I have been in hospital for three weeks today and am sicker than when I came in. Dr Giles Bond-Smith made what I believe to be a deliberate and transparent attempt on my life through mismedication (see story below “University College Hospital”). No independent investigation has been possible, because;

He then told the Camden Metropolitan Police Force I was mad and that they did not need to come and take a statement from me. So they didn’t bother. Then I telephoned New Scotland Yard (who confirmed what he had done). The operator realised they had accepted the word of a man accused of attempted murder against his accuser and that that was wrong - she said she would ensure the police attended.

Within two hours the Camden police did show up, took a small amount of evidence, but refused to take a statement. An hour after that the Consultant turned up in his tennis shorts on a Sunday morning - the first time I had seen him in a week - and tried to talk me out of pressing charges. this was intermingled with a conversation about my healthcare needs and I think the two should not have been so mixed up.

Since then - more than a week ago - I have telephoned the Camden Police on two occassions and asked what is happening. I was told an officer would call me back. My telephone calls do not get returned.

Today the Patientline system in the hospital -  which patients can use to watch TV, browse the internet and make phone calls, started refusing me access to all the website I own including this one. That happened at some point between 12pm and 6pm. I can only assume that all these events are related:

- The suppression of my human right to health is long documented on this site and now under investigation by a number of journalists and my MP. UCH are dilly-dallying at best and denying plain facts their own staff have seen and witnessed at worst.

The suppression of my human right to justice and fair access to the law has been accomplished it seems by joint enterprise of University College Hospital and the Camden Metropolitan Police force.

The attempts at understanding my health needs appear to be half hearted at best. The neurologist I met last week told me today there is “nothing wrong with my back”. He said the physiotherapist’s report completed over three weeks and which goes into great detail about the muscle wasting - naming most of the major groups in the back of my body by name as atrophied - is “wrong”.

Now Patientline are seemingly collaborating to supress my human right to freedom of speech and expression by denying me the right to write about my life and the denial of rights my “democratic” “motherland” offers. they are doing this by blocking my website so I can not publish without walking down the road to the internet cafe.

The material on this site is only objectionable to two groups of people: The first group is those doctors who lie and cheat. The second is paedophiles.

My lawyer will be on this in the morning.

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Filed under: Childhood Sexual Abuse, Medical History, Politics, Website, Life Stumble it! zigzagzen @ 2:30 pm
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Friday, September 14, 2007

      Making Things Work.

OK so … I’m in hospital … but I just can’t stop modding. When things are not right they demand change. This is the bedside system I’ve been using for the last 9 days. It’s based on an Epia Mobo with a via processor.
 

 
There are two handsets. one is a phone, the other controls the built in TV (30 channels) and radio and when you flip it over and open the cover, inside there is a 6 inch long qwerty keyboard with a built in mousepointer.
 
I use the net a lot … but this absurdly designed keyboard is difficult for an individual in full health to use … I am right handed and all the muscles behind my right shoulder have failed over the last three years … so after a few days of using this I now have a repetative strain injury and my wrist hurts like hell.
 
Something had to be done. MODDING TIME YAY !!!!
 
I called in the Occupational Therapist and asked for her help. I needed to somehow get the handset mounted on the table so I might be able to type with just my left hand.
 
Now that was a smart move: Lindsay the OT turned out to be gorgeous. Bright blue eyes, amazing smile … and it puts a :) on my face every time she visits. BEST medicine I  have had in nine days. ACTUALLY THE ONLY MEDICINE.
 
She built a little cradle for the handset for me out of plastic and returned the next day. It wasn’t very rigid so I used the broken lid off the handset - Lindsay was a bit shocked I think .. not very mod-aware lol) and got the sellotape (scotch) out and used the lid as a brace.
 
SO … between the oh-so-gorgeous Lindsay and myself this is what we have come up with …. and it works a treat I can tell you. The whole of this post has been typed with it :)
 
if it ain't broke break it

ps thanks to DaveW for getting  the pic up :)

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Filed under: Life, art, Computers Stumble it! zigzagzen @ 1:43 am
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Thursday, September 13, 2007

      University College Hospital.

I was admitted to University College Hospital London on Tuesday last week with a gastrointestinal infection that had seen my weight drop from nine stone to eight stone one pound in four days.

By Thursday the GI symptoms were over and the docs were contemplating discharge despite my BMI being only 15 as I had gained only three pounds in weight - basically through rehydration - and meaning the bug had consumed ten pounds of my already depleted flesh.

I said it wasn’t wise and that while I was here we may as well get to the bottom of my long term health issues. The consultant said I could stay and that although he could ask other docters to see me, he couldn’t “make them”.

This has certainly proven prophetic: the spinal surgeon, I was told the next day, “would not see me unless someone told him there was something wrong with my spine”. I am confused as to who this should be - as I wrote my MP - is it the cleaner who decides such things? Or the hospital cat, perhaps?

The weekend was awful. The ravages of the GI bug have taken such a toll on my musculature I got no more than three hours sleep each night before the effects of my Diazepam dose wore off and I awoke in increasing pain. I lay awake until time for my six AM dose - unable to increase the dose because of the systemic muscular weaknesses that are causing the other muscles into spasm.

It is a knife edge game trying to hold together a fast failing body by controlling the overworked compensating muscles with a drug that causes more harm to the damaged and weakened muscles.

I explained all this to the registrar in great depth during an extended conversation on Monday morning: that my Diazepam was no longer effective but that I could not risk increasing the dose as it is contraindicated by my musle weakness. I explained I was exhausted and in pain.

During  that conversation I suggested he had not understood what I think is wrong with me. He said he had so I asked him to explain what I think is wrong to establish this. He waffled some nonsense  about having “listened to my
signs and symptoms” and “not having time to go into it”.

Later that day I was told by my nurse that the analysis from the tests done the previous week had shown Campylobacter as the causal agent of the GI infection that lead to admission - the most common cause of GI problems and usually caught from undercooked poultry. I was told I was being placed on a course of the antibiotic Erythromycin.

This is contra-indicated - doubly in my case:

1. Erythromycin is contra-indicated in patients with muscle weakness.

2. Erythromycin slows the metabolism of Diazepam in the liver leading to a build up of Diazepam - effectively increasing the dosage of that drug - the very thing I had told the doctor must be avoided.

Given the in depth discussion I had with the doctor about my muscle weakness and Diazepam dose - and the knife-edge situation this leaves me in I was deeply troubled that an attempt was made to administer such a doubly contra-indicated drug on the very same day.

This is especially true as in his last role at The Royal London
Hospital the doctor was working under a consultant Liver specialist and therefore he must have been well aware of these facts.

In any case, it has not been estalished that I am a “carrier” of Campylobacter - chronic or otherwise - and there was no clear need for the antibiotcs. That I had had no recent GI symptoms for five days would imply the opposite - as a junior doctor agreed the very next day.

It all seems very strange to me.

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Filed under: Medical History Stumble it! zigzagzen @ 7:35 pm
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Wednesday, September 12, 2007

      Professor Norman Williams: The Lying Surgeon

Professor Norman Williams of the Royal London, Centre for Academic Surgery and Queen Mary’s University told me there was “no treatment” for rectal intessusception (internal rectal prolapse where the wall or part of the wall of the rectum comes away from it’s attachments).

This is a lie though I am not exactly sure why he lied. The most likely reason seems to be the medical negligence of his esteemed colleague Prof Parveen Kumar, former President of the BMA. Some of the test Williams was eventually leveraged into doing certainly proved she got it wrong in February 2005.

Back then she shoved her finger up my Jacksy (conducted a rectal exam), made me scream in agony, and told me everything was fine though I’d never recover (the incoherence of these statements seemed to pass her by).

The medical euphemism for what he did is “Professor Williams decided (I) was not a suitable canditate for surgery”. It’s not what he said to me. To me, he said “We don’t know why it happens and there is no treatment for it”.

There are in fact several non-surgical and several surgical interventions. None were discussed with me and he discharged me from his clinic after wasting nine months of my time by slowing investigations he promised to complete in a month.

He actually invented the latest less-invasive surgical technique - see below* - so there is no excuse for his lies.

He continues to lie however now telling my MP he “explained” to me in surgery that which he did not. The Public Accounts Committe were right. Doctors remain unnaccountable for their actions.

There is no way anyone is going to push this guy into admitting his lies and other negative actions and My MP, Lyn Brown, has to accept what she knows is a downright lie without further questioning, I guess my only hope of any justice, once again, is “publish and be damned”.

This was my attitude last year but after the debacle with the Medical (in)Defence(able) Union I decided to take it easy and back off, leave the Doctors alone, in the hope I would be given the right help. Prof Williams has proven to me that acquiesence only leads to being taken the piss out of. I’m afraid I have had enough of that.


Norman Williams - “The Lying Surgeon”?

It’s not surprising though. After all, when he first met me in clinic he said “we don’t normally do anything for people like you”. My crime? I’m a victim of paedophiles. Man I must be made of dirt. Thank the lord there are good people like Professor Williams to put me right and keep society safe from “people like me”.

I think we can all be grateful that Professor Williams is on the Board of The Royal College of Surgeons. At least medicine is safe in the hands of such an honest man. Sorry. I mean complete bare faced liar.

*From Pubmed:
Dench JE, Scott SM, Lunniss PJ, Dvorkin LS, Williams NS.

Centre for Academic Surgery, GI Physiology Unit, The Royal London Hospital, Whitechapel, London, United Kingdom.

PURPOSE: Internal rectal prolapse has been proposed as a cause of symptomatic rectal evacuatory dysfunction. Abdominal rectopexy, the standard surgical approach, has significant attendant risk and does not address any concomitant rectocele. This video was designed to demonstrate a novel surgical method that uses porcine collagen implants (Permacol), designed to correct internal rectal prolapse, with or without rectocele. METHODS: Inclusion criteria: severe rectal evacuatory dysfunction refractory to maximal conservative therapy and full-thickness internal rectal prolapse impeding rectal emptying on defecography with or without associated functional rectocoele; normal colonic transit. Patients undergo comprehensive preoperative and postoperative symptomatic assessment and anorectal physiologic testing, including defecography. A crescenteric perineal skin incision allows development of the rectovaginal/rectoprostatic plane to Denonvilliers fascia, with rectal mobilization. A curved tunneller inserted via the perineal wound is guided retropubically to emerge through suprapubic wounds created on each side. Permacol T-strips are sutured to the anterolateral rectal wall bilaterally, upward traction exerted, and the stem of each T-strip is sutured to the suprapubic periosteum, suspending the rectum. Concomitant rectocele is repaired using a Permacol patch in the rectovaginal plane. RESULTS: Short-term results for the “Express” are encouraging with improvement in evacuatory and prolapse symptoms and concomitant anatomic improvement at defecography. CONCLUSIONS: This procedure promises to be an effective technique for managing patients with refractory evacuatory dysfunction secondary to internal rectal prolapse, with or without rectocele.

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Filed under: Medical History Stumble it! zigzagzen @ 10:32 am
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