University College Hospital.
I was admitted to University College Hospital London on Tuesday last week with a gastrointestinal infection that had seen my weight drop from nine stone to eight stone one pound in four days.
By Thursday the GI symptoms were over and the docs were contemplating discharge despite my BMI being only 15 as I had gained only three pounds in weight - basically through rehydration - and meaning the bug had consumed ten pounds of my already depleted flesh.
I said it wasn’t wise and that while I was here we may as well get to the bottom of my long term health issues. The consultant said I could stay and that although he could ask other docters to see me, he couldn’t “make them”.
This has certainly proven prophetic: the spinal surgeon, I was told the next day, “would not see me unless someone told him there was something wrong with my spine”. I am confused as to who this should be - as I wrote my MP - is it the cleaner who decides such things? Or the hospital cat, perhaps?
The weekend was awful. The ravages of the GI bug have taken such a toll on my musculature I got no more than three hours sleep each night before the effects of my Diazepam dose wore off and I awoke in increasing pain. I lay awake until time for my six AM dose - unable to increase the dose because of the systemic muscular weaknesses that are causing the other muscles into spasm.
It is a knife edge game trying to hold together a fast failing body by controlling the overworked compensating muscles with a drug that causes more harm to the damaged and weakened muscles.
I explained all this to the registrar in great depth during an extended conversation on Monday morning: that my Diazepam was no longer effective but that I could not risk increasing the dose as it is contraindicated by my musle weakness. I explained I was exhausted and in pain.
During that conversation I suggested he had not understood what I think is wrong with me. He said he had so I asked him to explain what I think is wrong to establish this. He waffled some nonsense about having “listened to my
signs and symptoms” and “not having time to go into it”.
Later that day I was told by my nurse that the analysis from the tests done the previous week had shown Campylobacter as the causal agent of the GI infection that lead to admission - the most common cause of GI problems and usually caught from undercooked poultry. I was told I was being placed on a course of the antibiotic Erythromycin.
This is contra-indicated - doubly in my case:
1. Erythromycin is contra-indicated in patients with muscle weakness.
2. Erythromycin slows the metabolism of Diazepam in the liver leading to a build up of Diazepam - effectively increasing the dosage of that drug - the very thing I had told the doctor must be avoided.
Given the in depth discussion I had with the doctor about my muscle weakness and Diazepam dose - and the knife-edge situation this leaves me in I was deeply troubled that an attempt was made to administer such a doubly contra-indicated drug on the very same day.
This is especially true as in his last role at The Royal London
Hospital the doctor was working under a consultant Liver specialist and therefore he must have been well aware of these facts.
In any case, it has not been estalished that I am a “carrier” of Campylobacter - chronic or otherwise - and there was no clear need for the antibiotcs. That I had had no recent GI symptoms for five days would imply the opposite - as a junior doctor agreed the very next day.
It all seems very strange to me.
Listen to this post 
Stumble it!
zigzagzen @ 7:35 pm 
Is the medical system messed up or what? All the more reason why I don’t take much more than my daily dose of my medication (just a hormone supplement) and a Motrin or two when I get sick. I figure that (unless it’s a life threatening disease) it can’t hurt to let my body do all the work, it should help to boost my immune system…. I hope. This whole system of referrals and counter-referrals is dumb. I couldn’t get in to see my current doctor (who has done wonders, this woman I owe a lot…) without a referral (took some work to get one as people are too lazy in such sensitive areas) and to get my medication I had to get an MRI and for that I had to have my wrists scanned (the bones there are cartelige (sp?) until later on in puberty) and after all that was done, they still didn’t want to let me get my meds, but eventually did.
Just a side note: I’m hypoglycemic (look it up, I know what it is, but can’t think of how to explain it) due to hormone deficiencies: growth hormone and testosterone. I have a supplement for the gh in the form of a small shot every night, and am working on what I would like to use for the testosterone, the “cream” they have is a really watery gel that’s just gross, they have patches, but they don’t seem to work, and a shot every x days and that’s supposedly not “good” in some way. Both of these help regulate blood sugar levels and the testosterone plays a big role in mood, particularly depression and all, I get stressed out and am generally depressed (some of the time, I’m getting good at being in a good mood constantly) at times due to this.
But yeah, I really do hope these people start to “get their shit together” and help you out more so then they are (or are not) now.
-Anthony
Comment by xRyokenx — Friday, September 14, 2007 @ 9:37 am
Well .. the second test proved clear and so he should never have given me those meds in any case … hae reported him to the police for attempted murder but they seem really keen on collaboratiing with the docs to cover it up.
Who said we live in a democracy? I want to sue him under the trades desciption act.
Antony man.. I’m glad you found a good doctor mate .. it’s worth a lot when you have shit to deal with. ‘m sure you will find all the right help in the end
Comment by zigzagzen — Wednesday, September 19, 2007 @ 1:48 pm
Yeah… at the end of this long journey. FPS games really aren’t first person… not in the story sense, they’re the first person vision and you’re meant to figure stuff out for yourself, like my life. It seems like an overly long and complex game, but a good one… a more valuable and important one. No save points here.
Glad you reported him, but it sucks about the cops. I hate it when people don’t pay attention to you and they just kind of… “brush” you off. Even if it’s not on this world we both get what we both need and deserve, I believe there’s some sort of world after this, for reasons I can’t really explain at this time, where whatever we really want is there. A place of pure happiness. I’m trying to make this place as close to that as possible without truly going insane, just for the hell of it and to make it more enjoyable for me.
Comment by xRyokenx — Tuesday, September 25, 2007 @ 6:37 pm